We had the good fortune of connecting with Amber Freed and we’ve shared our conversation below.
Hi Amber, can you share a quote or affirmation with us?
Winston Churchill once said that success is going from failure to failure without loss of enthusiasm. It is never easy to receive bad news. It’s especially hard when the bad news is about the health of your child, or a scientist has hit a stumbling block or an anticipated treatment will not proceed. Life is a game of grit and tenacity. We have no choice but to pivot the game plan and move forward or stop. Failure is not an option for children with rare diseases.
Alright, so let’s move onto what keeps you busy professionally?
Amber N. Freed is fighting like a mother to cure SLC6A1. Amber Freed is the mother of of adorable twins, Miss Riley James and Mr. Maxwell Norman. Maxwell was 18 months old when the Freed family received his devastating diagnosis of SLC6A1. Ms. Freed left her career in equity analysis the day Maxwell was diagnosed and dedicated her life to finding a cure. In 18 months, Amber has single-handedly driven multiple translational treatments forward and become a leader within the rare disease community. Ms. Freed serves as the Founder and CEO of SLC6A1 Connect. SLC6A1 Connect’s work has elevated awareness and created an ecosystem that can systematically help fund and consolidate research and treatment efforts. Her efforts have been highlighted in the Huffington Post, Buzzfeed, Bloomberg, CNBC and many more. Ms. Freed was featured in the best-selling book, Shortcut to Prosperity, as an example of grit well before her skills were put to the ultimate test.
Let’s say your best friend was visiting the area and you wanted to show them the best time ever. Where would you take them? Give us a little itinerary – say it was a week long trip, where would you eat, drink, visit, hang out, etc.
I would sit outside a coffee shop in Cherry Creek and people watch.
Who else deserves some credit and recognition?
My shoutout is a dynamo named Effie Parks. Her warm smile, sense of humor and heartfelt friendship is everything you need in life.